This isn't going to be a "normal" blog post, but I figured I owed you an explanation of what's been going on lately and more importantly, I wanted to tell you. To very briefly recap those that don't know, I was diagnosed with Crohn's disease back in 2007 after going to the emergency room and being hospitalized on Christmas Day. (I know how to make the holidays more interesting.) Towards the end of 2008 my GI put me on a medication called Humira. I was still having Crohn's "flares" while on Humira, so in the summer of 2009 my GI doubled my dosage, putting me on a shot a week instead of every other week, which is over the max of what the FDA allows, so that was fun with my insurance company. Really, the past few years have been a lot of fun with my insurance company. They really hate me :) Anyway, taking one shot a week seemed to be pushing the Crohn's towards remission, finally.
Life never seems to be simple though. I started feeling bad back in April. I went to my regular doctor, he talked to the GI, and it was thought maybe the weekly Humira shot instead of twice monthly was causing some side effects, so I cut back to twice monthly, my old dosage, on that. At my next GI appointment in May he ran some tests and found out I'd developed a B12 deficiency which can happen in people with Crohn's. That also seemed to explain some of how I was feeling, but not everything. I now take a B12 shot monthly so that's under control. The other symptoms I had developed never got better, though. Dizziness, light headed, numbness, vision problems - all kinds of weird stuff. My regular doctor referred me to a neurologist in August. I went and got diagnosed with vertigo, but he wanted to do a MRI because a lot of what I was experiencing wasn't normal for a 27 year old. The MRI showed demyelination which is a sign of multiple sclerosis. He did a spinal tap to test for MS, and confirmed it. Jared, my parents and I went and met with the neurologist on Friday to go over all over this. He says he's 95% sure it is multiple sclerosis, but my case is complicated because of the Crohn's. Because of that I have to see a specialist which won't happen until October 21. So as far as treatment and how everything is going to go, it's kind of on hold right now. The neurologist and several other people have said MS is not the same as it was even 10 years ago, and I should be able to get it under control and everything will be fine. (Although do you want to know what one of the hardest parts of this has been? With the multiple sclerosis flaring up and my being so dizzy and unstable, I can't wear heels, hence the lack of heels the last few months in What I'm Wearing... posts. I hate wearing flats all the time! I knew you'd all understand!)
I know this isn't a normal post from me. I know that's a lot of text, and links, and information, and in the end really not that many answers to what the future holds for me. I have an amazing support system in my husband, my family, and my friends - and in the last few months that's also extended to my blogging friends as well. I know I've been doing this for a year, but I really started to get into it and take it seriously back in March and now I think of how fortunate that timing was. I've needed this the past few months and I know I'll continue to need it. You have no idea how much I love reading all your posts, how much I enjoy writing my own posts, and how it brightens my day to read all your comments. So to end this on a happy note - I love you all.